Thursday, November 20, 2014

Adventures in Mental Health Advocacy: Connected to Our Kin


Years ago, a family member, by marriage, was being mistreated and shunned.  What bothered me about the family’s response to his mental illness was:

1.       The family had known for decades something was different about this person;
2.       The family chose to shun him into “correct” behavior;
3.       The family was very vocal and judgmental about the misgivings and shortcomings of other people in general while completely blind to their own faults; and
4.       The family was unable to see and understand the magnitude of the harm they were causing to their loved one.


I was so bothered by their behavior that I spoke up.  I asked them, “How dare you not help him?  You have always known something was different about him.”  Especially when I began to understand this family knew of his illness when he was only 8 years old. 


This family’s truth is a psychiatrist prophesied the patient would end up in one of three places – jail, homeless or dead.  When I met him, he has visited the first two places and, by God’s grace, was still alive and in his 30’s.

Before I spoke up, the family had ceased offering emotional, financial or physical support.  Most of the time, no one knew where he was for months at a time.  And when he did reappear, his living arrangements involved abandoned houses, shelters or some woman who was quickly growing tired of him.  His body might even reflected a new set of scars from his latest attempts at self-harm.

Little did I know, in advocating for him, I was standing up for myself.  In the journey of his life, he now has stable housing, a source of income and his mental illness.  But, he is also in counseling.

This above family member is/was connected to me by marriage.  Although that marriage has ended, I still hold a special place in my heart for this man. 

In fact, I spoke him a few times while visiting my counseling agency.  He said to me, “You know, I want to tell you something.  I was able to address my mental health problems because you were so open about yours.”

Today, I wonder if he ever experienced the inner rage I felt for my family not being more proactive in assisting me with my emotional dysfunctions.  I understand, in reflection, why he would talk to his family in angry, aggressive tones sometimes.  Granted, I’m not a therapist but I bet he felt alone in the world.  That feeling of being alone in the world is enough to make anyone angry because of the underlying fear. 

Then to admit to yourself that the people who brought you into the world and have blood ties to you are unwilling to TRY and understand your dysfunctions is difficult to accept too.  If their lack of support has stemmed over a season of decades, the pain is even stronger. 
As the mental health patient begins to understand the labels and symptoms associated with past behaviors, and the warning signals they displayed, anger towards the family for “not knowing” and “not helping” is probably common.

For those of us with mental health issues, our families have a lot of shame.  This is the only disease that brings about a large sense of shame and embarrassment within the family unit.  They deal with the matter by remaining in denial about our sickness, blaming the patient and believing he/she should “know better.”  The family’s choice to remain angry at the consumer, who typically cannot help
themselves because they aren’t even living in their own reality, is not a solution.  Remaining silent and ignoring the problem in the hopes that it will go away is not the solution either. 

Who tries to help find a solution?  Any solution for the family unit that is suffering as a whole?

In this adventure of advocacy, I believe everyone can participate in the solution.  My part is to share my personal story.  I have to reveal to the world what it is like knowing I have mental health issues, what it is like realizing I have been sick for a long time without any self-awareness and how I began to chart a path toward personal healing.  Sharing with others, even if it is one person at a time, what it is like taking medication, how I felt as a result of my family’s response to my mental health and the ways I monitor myself and my behavior can only help. 

Another solution is for family members to begin listening.  Breathe, listen and listen some more.  Reflect.  Be honest about the past.  Then, gather information for many resources about how to assist, support or, at the very least, not be a part of the problem anymore.

My hope is that others will see how they can help their kindred instead of ignoring the problem and remaining silent. 

The human voice is so powerful.  Already, in one-on-one conversations I have been able to share with non-mental health consumers what their family members are experiencing as they spiral downward into depression or race fast forward towards a brick wall.  I encourage others to help their loved ones, recognize their bizarre and often strange calls for help and to not look for someone to blame. 


What the mental health consumer needs is support.  And, sometimes that looks like tough love – in order to protect themselves and others from harm.  There is a solution for our dilemma.  And if we could all move past the shame, both the family and the mental health consumer can recover.